How much more can my Mrs take

Nukes ....I read that with genuine sadness my friend, but also with a lot of anger....

i second this... im finding this country more and more frustrating by the day...


the way the country writes off countless cash on ridiculous subjects and then for genuine life saving reasons they cannot do it...

how much money is being wasted on abul qatada at the moment... how much money is being wasted on the military in afghanistan etc.. how much money is being wasted on the fecking olympics! infuriates me!

i really hope things get sorted nukes... and i hope someone takes the intiative and sees sense..[/quote.yuo,your wife and famly are in my prayers mate.keep strong

Dont know you mate but your story saddened me. It's a disgusting way to treat your wife. They seem to be forgetting it's real people involved here. Hope all goes well for your Mrs and you, good luck

Lads i dont know how my wife can get back up from this. She can hardly walk is in constant pain, and she can see no future but pain and depression. Cath rang me in work to say she what had happened. To say she was distressed was an understatement and it got to me (Anger and yes i was upset) they sent me home on two counts that i was unable to do my work and that my Wife needed me. We have been through every emotion now. Thank god she is now asleep the only time she can escape the pain, and its killing me to see. I clung to the thought she could get her life back together. Monday we shall see her consultant and i have had to promise Cath that i will keep my cool, but in reality i don't know if i can keep my promise.

Very sad to hear. I really hope they find something to fight the disease. Really wish all the best to your wife.

They have a few ways to halt the spread of this Disease Chief !! but they wont licence one due to costs and the other they have licenced here but wont give out due to costs. Now if someone wanted a sex change !!!!! Well that's different isn't it Just got the wife to bed now as the pain killers have knocked her out, but hey she aint bad enough is she !!

Keep fighting nukes. This country supports wasters etc yet wont support you and your family. If there is any support that me and my family can provide i would love to help.

You are a good man Chief

I really don't know what to say Steve, you put a brave face on things and all I can say is I am so sorry to read that you and your family are having to go through all this. I can only hope things will get better.

Sorry to hear about this Steve. It is really worrying. At the moment our thoughts and efforts should go into helping your wife. For the long term we ahould be looking at making sure this does not happen again. I wish your wife a recovery Steve and I pray lessons are learnt from this.

I think an appeal to the local health borad might be a good idea.

I'll see if I can find out any further information on what's the best way of doing that.

I think an appeal to the local health borad might be a good idea.

I'll see if I can find out any further information on what's the best way of doing that.

I really don't know what to say Steve, you put a brave face on things and all I can say is I am so sorry to read that you and your family are having to go through all this. I can only hope things will get better.

Annis i had a feeling they was going to do that when they sent a letter to Cath saying another Radiologist was going to examine the MRI but i never said anything to Cath in hope. They was going to turn her down no matter what IMO. Cath would of been only the second person in Wales to receive this treatment.
Wed was brilliant but always and i mean at all times this was a dark cloud on my mind, Right now i need to spend time with my Family make sure Cath gets over this latest relapse and then plan my next move. But it helps when you have got good mates and i am blessed with them from this board and off the Board.

Steve, Its one of them posts where u don't really know what to say... but i do hope your wife gets the treatment she deserves mate, Keep fighting and hopefully someone will listen and help...

Lads i dont know how my wife can get back up from this. She can hardly walk is in constant pain, and she can see no future but pain and depression. Cath rang me in work to say she what had happened. To say she was distressed was an understatement and it got to me (Anger and yes i was upset) they sent me home on two counts that i was unable to do my work and that my Wife needed me. We have been through every emotion now. Thank god she is now asleep the only time she can escape the pain, and its killing me to see. I clung to the thought she could get her life back together. Monday we shall see her consultant and i have had to promise Cath that i will keep my cool, but in reality i don't know if i can keep my promise.

Nukes no matter how much you are upset, and you clearly are, you must keep your cool. Understand that doctors are just like the blood sucking lawyers in that for everyone who tells you that you have no case there will be another 5 who will tell you that you have.

It's all about money and if the consultant that is treating your wife thinks she will benefit from the change in medication, why has another so called expert decided that she should wait. Money and political interference are at the root of that, trust me, so find out how you challenge or appeal the decision of this latest expert. If you get a load of bollocks about there being no appeal remember that it's just bollocks and get onto whoever is in charge of healthcare in the Assembley Government.

Also find a way to get the local media involved because they will love to get on the case because this is not really a matter of if your wife will benefit from the change in medication, this decision is based on money and that your wife is not in enough pain to justify the cost.I know that sounds callous but it's the truth and you need to stand strong and above all else strong, calm and determined to beat the bastards who made this decision.

The expert who made that decision is a well paid puppet of the Tory scum that run this country. Fight it with all the energy you have starting with the minister for healthcare in Wales. Also write to Wayne David or whatever or MP is called in Caerphilly you will find his contact details on the Houses Of Parliament website, send him an email trust me he will reply and he will take up the case in Westminster.

I was always told eventually the good guys win and this isn't going to be easy but eventually you will win.

Reading this post really makes my blood boil, I went through similar problems many years ago with my dad and to hear of someone still going through the same hoops really pisses me off.

All the best to you and your Mrs. Keep the pressure on them.

Dont know you mate but your story saddened me. It's a disgusting way to treat your wife. They seem to be forgetting it's real people involved here. Hope all goes well for your Mrs and you, good luck

Agree with this and all the above posts. Best of luck mate.

Lads i dont know how my wife can get back up from this. She can hardly walk is in constant pain, and she can see no future but pain and depression. Cath rang me in work to say she what had happened. To say she was distressed was an understatement and it got to me (Anger and yes i was upset) they sent me home on two counts that i was unable to do my work and that my Wife needed me. We have been through every emotion now. Thank god she is now asleep the only time she can escape the pain, and its killing me to see. I clung to the thought she could get her life back together. Monday we shall see her consultant and i have had to promise Cath that i will keep my cool, but in reality i don't know if i can keep my promise.

Nukes no matter how much you are upset, and you clearly are, you must keep your cool. Understand that doctors are just like the blood sucking lawyers in that for everyone who tells you that you have no case there will be another 5 who will tell you that you have.

It's all about money and if the consultant that is treating your wife thinks she will benefit from the change in medication, why has another so called expert decided that she should wait. Money and political interference are at the root of that, trust me, so find out how you challenge or appeal the decision of this latest expert. If you get a load of bollocks about there being no appeal remember that it's just bollocks and get onto whoever is in charge of healthcare in the Assembley Government.

Also find a way to get the local media involved because they will love to get on the case because this is not really a matter of if your wife will benefit from the change in medication, this decision is based on money and that your wife is not in enough pain to justify the cost.I know that sounds callous but it's the truth and you need to stand strong and above all else strong, calm and determined to beat the bastards who made this decision.

The expert who made that decision is a well paid puppet of the Tory scum that run this country. Fight it with all the energy you have starting with the minister for healthcare in Wales. Also write to Wayne David or whatever or MP is called in Caerphilly you will find his contact details on the Houses Of Parliament website, send him an email trust me he will reply and he will take up the case in Westminster.

I was always told eventually the good guys win and this isn't going to be easy but eventually you will win.

Some very good advice here Nukes

Steve, Ive met your wife on a few occassions and she's a la lovelyu lady who doesnt deserve any of this. I wish her all the best mate! Stay strong for her mate, catch up very soon!

Steve, its so sad to hear that mate, I fume at the inept decisions some people make without considering other peoples feelings.
Is there any way we could get a petition going about this so they give Cath the medication she so obviously needs.
I hope this can get sorted soon so Cath can at least live her life a little more comfortable than she has been.
All the very best to Cath and of course yourself chief, you are one in a million and a very good friend and I'm proud to know you.

Sorry to hear this sad news nukes its realy shocking, i am a carer for two gentlemen with ms its a horrible thing,they are both trying for a drug called satefex which eases spasms, one doctor says they can have it another says they cant because its too expensive, it makes me sick when they spend millions on immagrants and druggies in this country,keep on to these consultants nag the fck out of them its the only way they take any notice best of luck to you both.

Steve, its so sad to hear that mate, I fume at the inept decisions some people make without considering other peoples feelings.
Is there any way we could get a petition going about this so they give Cath the medication she so obviously needs.
I hope this can get sorted soon so Cath can at least live her life a little more comfortable than she has been.
All the very best to Cath and of course yourself chief, you are one in a million and a very good friend and I'm proud to know you.

Cheers good buddy and to everyone. The good messages really does help as it makes us feel we aint alone on this. I will fight this !! first i need to get her through this relapse, then i am going to work, and believe me i will ruffle feathers .

Dont know you or your family but that does not mean I dont feel your anger and frustration.

My advice , for what it is worth, is stay cool when you see the Dr, and then if things do not go the way you want get the media involved and shame them into giving your wife the treatment she needs,

I wish you and yours all the very best

Keep the Faith

Hope things work out Steve - Send my best to Mrs Nukes and Regan

My thoughts are with you nukes and Mrs nukes might be worth involving your MP/AM

A lot of you know my Wife has MS and she was on disease modifying drugs. Now these drugs was developed in the 80s for which the yanks got rid off in the 90s i believe as they had better drugs but in the third world that is Britain we still use these drugs today.

Now whilst my Wife was using these drugs she continued to relapse regularly as these drugs only reduced relapses by 30%. My Wife has been for a year, progressively been going down hill at a very steady rate so when she saw her consultant just over 4 months ago he decided to take her off her drugs saying there was new drugs being made available and these stop relapses up to 80% and even reduces disability, He explained my wife had to get the present drugs out of her system and a series of tests would be needed and her MRI had to show deterioration but for the first time her consultant had a smile and offered her hope as every day is a pain riddled experience.
His parting words was if her MRI showed no worsening or deterioration or there was deterioration it was a win win situation. Her tests showed she was compatible with these drugs and her MRI showed deterioration for which her MS Nurse phoned and said it was bitter sweet but the deterioration would help her get these new wonder drugs.

She was told: hopefully she could start these new drugs within 4 weeks and she had to see her consultant Monday to discuss this. But she has just suffered another relapse and is in considerable pain at the moment and today she got a phone call from her MS Nurse and she said her MRI has been looked at again by another so called expert and the deterioration isn't severe enough to give her these Drugs that she was convinced she would get, which believe me would change her life to the one she has got now.

They are now giving her another Drug that is in the same mold as the ones she had been taking which might reduce relapses up to 30%. How cruel are they to raise Cath's hopes for four Months only to be taken away because some bureaucrats have decided that Cath (to us) but to them most probably subject 3546 is not worthy of treatment.

I always thought the medical profession was to cause no harm but that is what they are doing to my Wife. They have left her with daily unimaginable pain no hope and no future. The only future she has is disability that will only get worse. And the bad thing is they can stop it but wont. She is so down and has been crying on and off for hours now. She is now falling asleep thank god. Sometimes i hate my Country i live in. Its a cruel heartless place which our health service is just politics.

This is one of the reasons I don't want us to throw so much money at the Olympics. It is money we could spend on helping you and your family.

I'm gutted for you, Steve. You and your family have suffered far too much and you deserve so much better.

nuclearblue. i cant for 1 minute imagine what you and your wife are going through. must be so hard for you both. good luck and best wishes to the both of you. x

my partner as got it, effects right side on methatroxate for it, to many risks to change they say as been stable for years, the best treatment can be stem cell treatment but nobody is willing to push for this dont know why, but know off someone who had such treatment abroad and had great improvement, only to break hip when falling, think its same with all treatments for illnesses of anykind, just think of all the so called cures for cancer ect but have we seen any on market no! because all people are interested in is money get funding to reserch find cure then stop, go onto something else same thing get funding to reserch it and so forth and so forth hence no cure for cancer , ms, alzymers, ect ect all a big con!

my partner as got it, effects right side on methatroxate for it, to many risks to change they say as been stable for years, the best treatment can be stem cell treatment but nobody is willing to push for this dont know why, but know off someone who had such treatment abroad and had great improvement, only to break hip when falling, think its same with all treatments for illnesses of anykind, just think of all the so called cures for cancer ect but have we seen any on market no! because all people are interested in is money get funding to reserch find cure then stop, go onto something else same thing get funding to reserch it and so forth and so forth hence no cure for cancer , ms, alzymers, ect ect all a big con!

Its not a cure Chief. It has a good chance of halting the spread of the disease

my partner as got it, effects right side on methatroxate for it, to many risks to change they say as been stable for years, the best treatment can be stem cell treatment but nobody is willing to push for this dont know why, but know off someone who had such treatment abroad and had great improvement, only to break hip when falling, think its same with all treatments for illnesses of anykind, just think of all the so called cures for cancer ect but have we seen any on market no! because all people are interested in is money get funding to reserch find cure then stop, go onto something else same thing get funding to reserch it and so forth and so forth hence no cure for cancer , ms, alzymers, ect ect all a big con!

Its not a cure Chief. It has a good chance of halting the spread of the disease

they dont seem to want to change meds incase it makes people deteriate, thats what they told us last appt, according to dr there is very little in way of new treatments out there so not much chance to improve condition.

Steve, I felt really sad reading that. God Bless your Wife, yourself and your Family. What you wrote puts life into perspective.
Don't forget Mate, if you need me for car washing /fundraising, I am phone call away. ATB. Reeco

Steve, I felt really sad reading that. God Bless your Wife, yourself and your Family. What you wrote puts life into perspective.
Don't forget Mate, if you need me for car washing /fundraising, I am phone call away. ATB. Reeco

Thanks Mate and yes i will defo take you up on your offer. I was going to start organising that soon but the wife's relapse has put that on hold.

But today we went to see her Consultant and my Mrs was very impressed with me as i was really calm But he explained in detail why she isn't getting the new drugs as her MRI had shown new lesions but some of her old one's had disappeared. In relapsing and remitting the disease attacks the Myelin surrounding the nerves. Some times it can destroy the Myelin or sometimes it can inflame it, so it seems that some of the damage has repaired itself which is fantastic news. He said he asked a specialist to look at her results in detail and after careful consideration they have decided to not proceed as at the moment they have strict guidelines. But at the moment her latest Relapse has hit her Legs really hard and walking is very painful for her, so the consultant is concerned enough to give her another MRI this time on her spine to check for Lesions there, i did not know it can effect there but there you go. And if she has these Lesions then she could still be entitled to these new drugs. But because of her relapse she would normally get treated with very high doses of steroids but at the moment she is stuck between a rock and a hard place as if she takes the steroids it would Mask the MRI scan, and if she dosen't take the steroids she is going to be in pain longer but she has chosen to forsake the steroids to have the MRI scan, she is one brave Lady. But to be fair to the Consultant what he said made sense and we will take it day by day.

my partner as got it, effects right side on methatroxate for it, to many risks to change they say as been stable for years, the best treatment can be stem cell treatment but nobody is willing to push for this dont know why, but know off someone who had such treatment abroad and had great improvement, only to break hip when falling, think its same with all treatments for illnesses of anykind, just think of all the so called cures for cancer ect but have we seen any on market no! because all people are interested in is money get funding to reserch find cure then stop, go onto something else same thing get funding to reserch it and so forth and so forth hence no cure for cancer , ms, alzymers, ect ect all a big con!

Its not a cure Chief. It has a good chance of halting the spread of the disease

they dont seem to want to change meds incase it makes people deteriate, thats what they told us last appt, according to dr there is very little in way of new treatments out there so not much chance to improve condition.

Thats not true Chief, they have been using these new drugs in America for mearly 10 years and it is proven. Yes there are risks but the benefits outweigh the bad. And there is more coming within the next couple of years. Was told this today.

Keep strong Steve for Mrs Nukes and Regan's sake.Thinking of you mate.Is there any way you can speak to your local mp about this mate.

Keep strong Steve for Mrs Nukes and Regan's sake.Thinking of you mate.Is there any way you can speak to your local mp about this mate.

Hanging on at the moment Lee as explained 3 posts up repling to Reccos post.