How much more can my Mrs take

A lot of you know my Wife has MS and she was on disease modifying drugs. Now these drugs was developed in the 80s for which the yanks got rid off in the 90s i believe as they had better drugs but in the third world that is Britain we still use these drugs today.

Now whilst my Wife was using these drugs she continued to relapse regularly as these drugs only reduced relapses by 30%. My Wife has been for a year, progressively been going down hill at a very steady rate so when she saw her consultant just over 4 months ago he decided to take her off her drugs saying there was new drugs being made available and these stop relapses up to 80% and even reduces disability, He explained my wife had to get the present drugs out of her system and a series of tests would be needed and her MRI had to show deterioration but for the first time her consultant had a smile and offered her hope as every day is a pain riddled experience.
His parting words was if her MRI showed no worsening or deterioration or there was deterioration it was a win win situation. Her tests showed she was compatible with these drugs and her MRI showed deterioration for which her MS Nurse phoned and said it was bitter sweet but the deterioration would help her get these new wonder drugs.

She was told: hopefully she could start these new drugs within 4 weeks and she had to see her consultant Monday to discuss this. But she has just suffered another relapse and is in considerable pain at the moment and today she got a phone call from her MS Nurse and she said her MRI has been looked at again by another so called expert and the deterioration isn't severe enough to give her these Drugs that she was convinced she would get, which believe me would change her life to the one she has got now.

They are now giving her another Drug that is in the same mold as the ones she had been taking which might reduce relapses up to 30%. How cruel are they to raise Cath's hopes for four Months only to be taken away because some bureaucrats have decided that Cath (to us) but to them most probably subject 3546 is not worthy of treatment.

I always thought the medical profession was to cause no harm but that is what they are doing to my Wife. They have left her with daily unimaginable pain no hope and no future. The only future she has is disability that will only get worse. And the bad thing is they can stop it but wont. She is so down and has been crying on and off for hours now. She is now falling asleep thank god. Sometimes i hate my Country i live in. Its a cruel heartless place which our health service is just politics.

A lot of you know my Wife has MS and she was on disease modifying drugs. Now these drugs was developed in the 80s for which the yanks got rid off in the 90s i believe as they had better drugs but in the third world that is Britain we still use these drugs today.

Now whilst my Wife was using these drugs she continued to relapse regularly as these drugs only reduced relapses by 30%. My Wife has been for a year, progressively been going down hill at a very steady rate so when she saw her consultant just over 4 months ago he decided to take her off her drugs saying there was new drugs being made available and these stop relapses up to 80% and even reduces disability, He explained my wife had to get the present drugs out of her system and a series of tests would be needed and her MRI had to show deterioration but for the first time her consultant had a smile and offered her hope as every day is a pain riddled experience.
His parting words was if her MRI showed no worsening or deterioration or there was deterioration it was a win win situation. Her tests showed she was compatible with these drugs and her MRI showed deterioration for which her MS Nurse phoned and said it was bitter sweet but the deterioration would help her get these new wonder drugs.

She was told: hopefully she could start these new drugs within 4 weeks and she had to see her consultant Monday to discuss this. But she has just suffered another relapse and is in considerable pain at the moment and today she got a phone call from her MS Nurse and she said her MRI has been looked at again by another so called expert and the deterioration isn't severe enough to give her these Drugs that she was convinced she would get, which believe me would change her life to the one she has got now.

They are now giving her another Drug that is in the same mold as the ones she had been taking which might reduce relapses up to 30%. How cruel are they to raise Cath's hopes for four Months only to be taken away because some bureaucrats have decided that Cath (to us) but to them most probably subject 3546 is not worthy of treatment.

I always thought the medical profession was to cause no harm but that is what they are doing to my Wife. They have left her with daily unimaginable pain no hope and no future. The only future she has is disability that will only get worse. And the bad thing is they can stop it but wont. She is so down and has been crying on and off for hours now. She is now falling asleep thank god. Sometimes i hate my Country i live in. Its a cruel heartless place which our health service is just politics.

What a disgrace, why is it the politicians are in charge of the health service? Surely the Health service should be run by people who actually work in the health service?

All the best for your wife though mate.

A lot of you know my Wife has MS and she was on disease modifying drugs. Now these drugs was developed in the 80s for which the yanks got rid off in the 90s i believe as they had better drugs but in the third world that is Britain we still use these drugs today.

Now whilst my Wife was using these drugs she continued to relapse regularly as these drugs only reduced relapses by 30%. My Wife has been for a year, progressively been going down hill at a very steady rate so when she saw her consultant just over 4 months ago he decided to take her off her drugs saying there was new drugs being made available and these stop relapses up to 80% and even reduces disability, He explained my wife had to get the present drugs out of her system and a series of tests would be needed and her MRI had to show deterioration but for the first time her consultant had a smile and offered her hope as every day is a pain riddled experience.
His parting words was if her MRI showed no worsening or deterioration or there was deterioration it was a win win situation. Her tests showed she was compatible with these drugs and her MRI showed deterioration for which her MS Nurse phoned and said it was bitter sweet but the deterioration would help her get these new wonder drugs.

She was told: hopefully she could start these new drugs within 4 weeks and she had to see her consultant Monday to discuss this. But she has just suffered another relapse and is in considerable pain at the moment and today she got a phone call from her MS Nurse and she said her MRI has been looked at again by another so called expert and the deterioration isn't severe enough to give her these Drugs that she was convinced she would get, which believe me would change her life to the one she has got now.

They are now giving her another Drug that is in the same mold as the ones she had been taking which might reduce relapses up to 30%. How cruel are they to raise Cath's hopes for four Months only to be taken away because some bureaucrats have decided that Cath (to us) but to them most probably subject 3546 is not worthy of treatment.

I always thought the medical profession was to cause no harm but that is what they are doing to my Wife. They have left her with daily unimaginable pain no hope and no future. The only future she has is disability that will only get worse. And the bad thing is they can stop it but wont. She is so down and has been crying on and off for hours now. She is now falling asleep thank god. Sometimes i hate my Country i live in. Its a cruel heartless place which our health service is just politics.

MS is the most evil illness.

It really winds me up when our governments spend billions on wars that we dont want yet cant splash the cash on those that need it.

hello m8,not sure how to reply to your post,but my best wishe's go to you both. CCFC

Really felt for you Steve reading this post. You are right Health Care is wrapped up in Politics. I hope everything works out for Cath. I have met you many times Steve at City matches, and your a top guy, you deserve the best for yourself and your Family.

The health service should be run by doctors. Education should be run by teachers and defence should be run by the army.

sorry to hear that Mrs Nukes wont be getting the treatment that she obviously needs. wish her all the best from me mate. and hope that sooner rather than later they will realise what they are putting her through and give her what she needs.

The health service should be run by doctors. Education should be run by teachers and defence should be run by the army.

This. All the politicians need to do is.

1.) Stabalise the economy

2.) Create growth and jobs

3.) Give each of them a decent budget.

Nukes ....I read that with genuine sadness my friend, but also with a lot of anger....

Lads i dont know how my wife can get back up from this. She can hardly walk is in constant pain, and she can see no future but pain and depression. Cath rang me in work to say she what had happened. To say she was distressed was an understatement and it got to me (Anger and yes i was upset) they sent me home on two counts that i was unable to do my work and that my Wife needed me. We have been through every emotion now. Thank god she is now asleep the only time she can escape the pain, and its killing me to see. I clung to the thought she could get her life back together. Monday we shall see her consultant and i have had to promise Cath that i will keep my cool, but in reality i don't know if i can keep my promise.

The health service should be run by doctors. Education should be run by teachers and defence should be run by the army.

This. All the politicians need to do is.

1.) Stabalise the economy

2.) Create growth and jobs

3.) Give each of them a decent budget.

We have way too many politicians at local level and also too many MPs. Wales and Scotland have assembly govts that are a waste of space/cash. Add in europe as well and billions are pissed against wall.

We need a small number of MPs who are elected by us. The budget needs to be decided by bank of ingerlund. Each dept such as health needs to be run by doctors, education by teachers and so on.

It wont happen as politicians are in it for themselves and couldnt give a fook about nukes' wife or any1 else apart from themselves.

Lads i dont know how my wife can get back up from this. She can hardly walk is in constant pain, and she can see no future but pain and depression. Cath rang me in work to say she what had happened. To say she was distressed was an understatement and it got to me (Anger and yes i was upset) they sent me home on two counts that i was unable to do my work and that my Wife needed me. We have been through every emotion now. Thank god she is now asleep the only time she can escape the pain, and its killing me to see. I clung to the thought she could get her life back together. Monday we shall see her consultant and i have had to promise Cath that i will keep my cool, but in reality i don't know if i can keep my promise.

Very sad to hear. I really hope they find something to fight the disease. Really wish all the best to your wife.

Keep your cool Nukes for your wifes sake even though it will be hard. Its wrong what is happening to our once great Country and I really hope the Docs can get the decision changed for your Mrs.

Lads i dont know how my wife can get back up from this. She can hardly walk is in constant pain, and she can see no future but pain and depression. Cath rang me in work to say she what had happened. To say she was distressed was an understatement and it got to me (Anger and yes i was upset) they sent me home on two counts that i was unable to do my work and that my Wife needed me. We have been through every emotion now. Thank god she is now asleep the only time she can escape the pain, and its killing me to see. I clung to the thought she could get her life back together. Monday we shall see her consultant and i have had to promise Cath that i will keep my cool, but in reality i don't know if i can keep my promise.

Very sad to hear. I really hope they find something to fight the disease. Really wish all the best to your wife.

They have a few ways to halt the spread of this Disease Chief !! but they wont licence one due to costs and the other they have licenced here but wont give out due to costs. Now if someone wanted a sex change !!!!! Well that's different isn't it Just got the wife to bed now as the pain killers have knocked her out, but hey she aint bad enough is she !!

Lads i dont know how my wife can get back up from this. She can hardly walk is in constant pain, and she can see no future but pain and depression. Cath rang me in work to say she what had happened. To say she was distressed was an understatement and it got to me (Anger and yes i was upset) they sent me home on two counts that i was unable to do my work and that my Wife needed me. We have been through every emotion now. Thank god she is now asleep the only time she can escape the pain, and its killing me to see. I clung to the thought she could get her life back together. Monday we shall see her consultant and i have had to promise Cath that i will keep my cool, but in reality i don't know if i can keep my promise.

Very sad to hear. I really hope they find something to fight the disease. Really wish all the best to your wife.

They have a few ways to halt the spread of this Disease Chief !! but they wont licence one due to costs and the other they have licenced here but wont give out due to costs. Now if someone wanted a sex change !!!!! Well that's different isn't it Just got the wife to bed now as the pain killers have knocked her out, but hey she aint bad enough is she !!

Absolutely disgusting. So what do the Tories do to improve the NHS? Cut their fecking budget!!! GIVE THEM MORE MONEY AND MORE POWER.

So sorry to hear about your wife mate as you may remember I posted a while back about my wifes MS, before she sadly passed away (heart attack). I fully understand your plight and can only wish your wife gets the appropriate medication she rightly needs.

So sorry to hear about your wife mate as you may remember I posted a while back about my wifes MS, before she sadly passed away (heart attack). I fully understand your plight and can only wish your wife gets the appropriate medication she rightly needs.

Yes mate i do remember you very well. I will fight this with every ounce i have in me Chief

So sorry to hear about your wife mate as you may remember I posted a while back about my wifes MS, before she sadly passed away (heart attack). I fully understand your plight and can only wish your wife gets the appropriate medication she rightly needs.

Yes mate i do remember you very well. I will fight this with every ounce i have in me Chief

Best of luck mate

Steve it goes without saying I hope Cath finally gets the treatment she needs. That was truly sad to read.

Lads i dont know how my wife can get back up from this. She can hardly walk is in constant pain, and she can see no future but pain and depression. Cath rang me in work to say she what had happened. To say she was distressed was an understatement and it got to me (Anger and yes i was upset) they sent me home on two counts that i was unable to do my work and that my Wife needed me. We have been through every emotion now. Thank god she is now asleep the only time she can escape the pain, and its killing me to see. I clung to the thought she could get her life back together. Monday we shall see her consultant and i have had to promise Cath that i will keep my cool, but in reality i don't know if i can keep my promise.

Very sad to hear. I really hope they find something to fight the disease. Really wish all the best to your wife.

They have a few ways to halt the spread of this Disease Chief !! but they wont licence one due to costs and the other they have licenced here but wont give out due to costs. Now if someone wanted a sex change !!!!! Well that's different isn't it Just got the wife to bed now as the pain killers have knocked her out, but hey she aint bad enough is she !!

Keep fighting nukes. This country supports wasters etc yet wont support you and your family. If there is any support that me and my family can provide i would love to help.

Sums up our country, hope your luck changes. Absolute awful for you both. Your post truly saddened me

You are all truly great set of Lads. But it helps me getting a few things of my chest. Hopefully tomorrow i can re focus and start to help Cath with the latest relapse and start to get the support and drugs she needs

Steve

Brings a tear to the eye reading that mate,
Shocking to hear and read all that,
How the government can justify anything they input money into over serious illnesses that affect people's lives and loved ones is despicable,

Truly sorry for u mate,

Hope things get better mate

Steve

Brings a tear to the eye reading that mate,
Shocking to hear and read all that,
How the government can justify anything they input money into over serious illnesses that affect people's lives and loved ones is despicable,

Truly sorry for u mate,

Hope things get better mate

Cheeers Jules!! was on my mind massive Wed night but it did help for a few hours at least with good company

Lads i dont know how my wife can get back up from this. She can hardly walk is in constant pain, and she can see no future but pain and depression. Cath rang me in work to say she what had happened. To say she was distressed was an understatement and it got to me (Anger and yes i was upset) they sent me home on two counts that i was unable to do my work and that my Wife needed me. We have been through every emotion now. Thank god she is now asleep the only time she can escape the pain, and its killing me to see. I clung to the thought she could get her life back together. Monday we shall see her consultant and i have had to promise Cath that i will keep my cool, but in reality i don't know if i can keep my promise.

Very sad to hear. I really hope they find something to fight the disease. Really wish all the best to your wife.

They have a few ways to halt the spread of this Disease Chief !! but they wont licence one due to costs and the other they have licenced here but wont give out due to costs. Now if someone wanted a sex change !!!!! Well that's different isn't it Just got the wife to bed now as the pain killers have knocked her out, but hey she aint bad enough is she !!

Nukes, my sympathy goes to both you and your good lady...I know exactly how angry you feel because my wife and I went through the ringer when she was diagnosed with Kidney failure At the time I was so irate that we had been left in the dark by the Health Service that I ended up making myself ill which made things ten times worse as I am her only carer...In the end we wrote directly to the Health Minister at the Welsh Assembly to complain about the lack of patient care and the strain it had put on both our health and relationship. This seemed to do the trick as her care since this time has been markedly improved...My advice is keep your cool (I know that is easier said than done) and I'm sure things will start to work themselves out for you both..Chin up

Lads i dont know how my wife can get back up from this. She can hardly walk is in constant pain, and she can see no future but pain and depression. Cath rang me in work to say she what had happened. To say she was distressed was an understatement and it got to me (Anger and yes i was upset) they sent me home on two counts that i was unable to do my work and that my Wife needed me. We have been through every emotion now. Thank god she is now asleep the only time she can escape the pain, and its killing me to see. I clung to the thought she could get her life back together. Monday we shall see her consultant and i have had to promise Cath that i will keep my cool, but in reality i don't know if i can keep my promise.

Very sad to hear. I really hope they find something to fight the disease. Really wish all the best to your wife.

They have a few ways to halt the spread of this Disease Chief !! but they wont licence one due to costs and the other they have licenced here but wont give out due to costs. Now if someone wanted a sex change !!!!! Well that's different isn't it Just got the wife to bed now as the pain killers have knocked her out, but hey she aint bad enough is she !!

Nukes, my sympathy goes to both you and your good lady...I know exactly how angry you feel because my wife and I went through the ringer when she was diagnosed with Kidney failure At the time I was so irate that we had been left in the dark by the Health Service that I ended up making myself ill which made things ten times worse as I am her only carer...In the end we wrote directly to the Health Minister at the Welsh Assembly to complain about the lack of patient care and the strain it had put on both our health and relationship. This seemed to do the trick as her care since this time has been markedly improved...My advice is keep your cool (I know that is easier said than done) and I'm sure things will start to work themselves out for you both..Chin up

Steve

Brings a tear to the eye reading that mate,
Shocking to hear and read all that,
How the government can justify anything they input money into over serious illnesses that affect people's lives and loved ones is despicable,

Truly sorry for u mate,

Hope things get better mate

Cheeers Jules!! was on my mind massive Wed night but it did help for a few hours at least with good company

Some release for u matey
Feel for ya buddy, all the best Nukes and to Mrs Nukes

Nothing more I can add apart from stay strong mate. Thinking of you and your wife.

Nukes ....I read that with genuine sadness my friend, but also with a lot of anger....

i second this... im finding this country more and more frustrating by the day...


the way the country writes off countless cash on ridiculous subjects and then for genuine life saving reasons they cannot do it...

how much money is being wasted on abul qatada at the moment... how much money is being wasted on the military in afghanistan etc.. how much money is being wasted on the fecking olympics! infuriates me!

i really hope things get sorted nukes... and i hope someone takes the intiative and sees sense..